(Download) "Ultra-Violet" by Chelsea McCutchin, Debbie Frisk, Nathan Lueth & James G Balestrieri " eBook PDF Kindle ePub Free
eBook details
- Title: Ultra-Violet
- Author : Chelsea McCutchin, Debbie Frisk, Nathan Lueth & James G Balestrieri
- Release Date : January 15, 2014
- Genre: Family & Relationships,Books,Nonfiction,Professional & Technical,Education,
- Pages : * pages
- Size : 33804 KB
Description
Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl’s Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome—but how to live as Violet.
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